No matter how many times or how many tears, it will never bring back my baby girl, I miss, love you dearly my sweet angel. When they told me I was going to have triplets, I was so shocked, happy, and going to be a proud momma of 3 babies. I took my shots, medicine, vitamins as provided.
The doctor wanted me to reduce the pregnancy, meaning, like an abortion, to minimize the fetuses inside me. I declined. Months past, I grew bigger and bigger when I couldn’t take anymore, I was forbidden to go anywhere; I was in bed mostly because of my size of my belly. I went for 33 weeks and 5 days, they said, that this is perfect and the longest for anyone, that’s their opinion. I was happy; I saw my ultrasound in the hospital bed. “You are ready to deliver!” the doctor said. I packed for my delivery. We drove to Riyadh, Saudi Arabia. Riyadh is the Capital of KSA. It’s so crowded!!
They immediately admitted me, because of my size of the belly, I couldn’t walk, and I was wheelchair inside the hospital. My husband saw me go into the room and said “bring me a winner!” We laughed. I went to my room, and lied down; I was so tired and exhausted. Many people came in and see me and said WOW! There’s a word in Arabic we say; Mashallah! Means good things are from God!
The nurse asked me, “You want to hear their heartbeats?” I said, “YES!” I heard them, I started to cry w/joy, wishing my husband would come and hear them…
3 days past and nothing..lol, finally my water broke, and I screamed “NURSE!” I told her my water broke she called the doctor and examined me and they prepared me for C-Section. I rolled into the OR and counted 15 people in the room for me. I went under, and Woke up to “ wake up” I woke up stoned… and wanting to throw up. I rubbed my tummy and no big belly anymore. They rolled me out and said, Congrates, you have all girls!!! I cried w/joy and happiness.
Next few days, are the hardest for me to this day, I finally saw my girls they were in NICU. I saw my girls and my angel Lora. Mashallah, Lora had a full head of hair, and the prettiest eyes you would ever seen, brownish-green. So beautiful. MY first one was in full recovery and headed upstairs, followed by my second one. Lora stayed.
I can’t go on anymore, please read my desperate plea for help regarding Lora. She’s my world to me.
PLEASE READ: VERY IMPORTANT!!!
To whom it may concern:
I am emailing you this letter in regards pertaining to my daughter Lora. She is now hospitalized at King Faisal Specialist Hospital and Research Center, in Riyadh. My baby is the last of the triplets, born on November 19, 2006 at King Fahd Medical City also in Riyadh.
The doctors of King Fahd, examined her and they found out that she has a rare Laryngeal Tracheo Esophageal Cleft type III, a small hole in the heart, a small stomach because always had secretions coming from her mouth. The doctors at King Fahd, advise us to transfer her to King Faisal Hospital. So, we did it. She was then transferred to King Faisal Specialist Hospital. Because they have a good surgeon and that they couldn’t do the surgery at King Fahd Medical City. She was hospitalized from November 19 - December 27, 2006 at King Fahd Medical City.
She was then examined by the doctors at King Faisal; they said the same thing at King Fahd. Since, then she is still hospitalized at King Faisal. The doctors examined her she needed surgery for the heart, esophagus, trachea, stomach. She has a rare anomaly LARNGEAL TRACHEO ESOPHAGEAL CLEFT TYPE III; this is rare in Saudi Arabia they told me. Also, MICROGASTRIA, VSD (COMPLEX). They told us the consequences if the trachea and esophagus fused together, then after the surgery the heart and the same thing for the heart the consequences.
At that time, both surgeries where successful the separation of the trachea and esophagus and the heart as well. BUT, we noticed after that she has 3 times to my knowledge lung collapse, whole body edema and upper body edema. Which she never had lung collapse and the edema at King Fahd. Two weeks ago, they mentioned the rectovaginal fistula. Which is, she never had THIS one at King Fahd.
The date of her first surgery was at King Faisal: January 16 for the separation of the Trachea and Esophagus (LARNGEAL TRACHEO ESOPHAGEAL CLEFT TYPE III.) As I recalled, this surgery was ’successful’ according to the pediatric surgeon. The next step was the heart, for VSD. That too was successful, as I was told at that time. Since then Lora was up and down, like a rollercoaster, w/lung collapse of the left lung and edema. Every day I called, to see how she is, they replied: “she’s fine,” We noticed Tuesday last week, she was ‘improving’ a lot, with oxygen machine and nitric oxide. On Wednesday, they removed the nitric oxide, because they said she was doing “good”. “Thank GOD” Also, we notice the pressure of the oxygen going down. I talked to the head pediatric surgeon, he told me about the next step, about putting the trach. Instead of the tube down her lungs, this is “good step”. We were so happy my family and I.
BUT, yesterday, March 12, 2007 Dr. Regal called, he mentioned to us that the heart wasn’t successful. WE WERE SHOCKED, DEVASTED, DESTROYED my dreams of having my daughter in my arms. He told us that on the medical side that they couldn’t do “nothing”. Even, we couldn’t decide to do another operation.
When I asked the doctor HOW COME didn’t tell us from the beginning about her heart not successful???? When I asked him this question, he said we could NOT take xray of the heart, just blood cultures. But I notice, they can take XRAY almost every day for the lungs!!!!!! And we notice also, ECG for the heart was Fine. Even the O2 saturation in the 90s.
Please I really need a solution for my daughter. I need a 2nd opinion. PLEASE I want to save my daughter’s life….
Please contact me ASAP.
I really thank you for your time and understanding.
With regards,
Lora’s Parents
P.S. UPDATE: MARCH 20, 2007, my daughter is back on the HIGH FREQUENCY OSCILLATOR VENTILATOR her oxygen is at: 40 - 80%, with Nitric Oxide. At times, her oxygen tends to go up when she is being handled. She has a central line as of Feb. 17. The cardiologist team saw her and they want to repair the patch. But there is an option for medication.
Sadly, while we were driving to Riyadh on May 19, 2007 early morning the doctor called at 1am saying they couldn’t revive her from her CODE BLUE. I was told she had one later that evening. To this day, and forever, I’m deeply saddened over my lost of my little angel; she would look like between my girls. I need to be there for my girls now; I shared this touching story to you and your family. If you have anything please email me. Your thoughts will deeply matter to me and my family.
Love,
camelcrusher
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